Abstract
In recent decades, the prevalence of Autism Spectrum Disorder (ASD) has increased globally, affecting approximately 1 in 160 children (WHO 2021). This rise extends to emerging nations like Oman, presenting unique challenges. This Interpretative Phenomenological Analysis (IPA) research study delves into the experiences and perceptions of Omani parents raising and educating children with ASD, aiming to provide an insider's viewpoint. The data collection method involved semi-structured interviews with a purposive sample of eleven participants, comprising seven fathers and four mothers. The study reveals three Superordinate themes: 'Parents' Perceptions of ASD', 'Power of Parents', and 'Challenging Journey', each encompassing various subthemes.The findings unveil the transformative journey of Omani parents as they navigate the significance of ASD in their lives, a journey heavily influenced by their cultural, religious, and personal beliefs. Throughout this journey, parents' emotions undergo dynamic shifts, encompassing a spectrum from doubt and fear to acceptance and optimism. These emotional shifts inspire parents to seek knowledge, support, and diverse educational approaches for their children, showcasing their unwavering resilience and determination.
A central theme emerges in the form of Arab culture and Islamic beliefs, shaping parents' perspectives on the causes, treatments, and management of ASD. This theme illustrates a substantial evolution of these beliefs over time, mirroring the parents' own transformation and adaptability throughout their journey. The study's impact lies in its unique contribution to understanding the lived experiences of parents in an Omani context, highlighting the challenges they face in finding suitable educational environments, making informed decisions, and countering societal stigma. The insights gained underscore the critical importance of culturally informed support and interventions for families dealing with ASD in non-Western societies.
Recommendations include the need for comprehensive legislation, revised education programs, standardized diagnostic procedures, accessible support services, and community initiatives to address the rights and needs of individuals with ASD. Additionally, the study stressed the importance of considering ASD severity, socioeconomic status, and related factors in tailoring support for diverse families. In conclusion, this research enriches our understanding of the experiences of Omani parents raising children with ASD, underscoring the critical importance of empowering and supporting parents to effectively navigate these multifaceted challenges.
| Date of Award | 2023 |
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| Original language | English |
| Awarding Institution |
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| Supervisor | Janet Finlayson (Supervisor), Chris Darbyshire (Supervisor) & Martin Kettle (Supervisor) |