What is the lived experience of anxiety for people with Parkinson’s? A phenomenological study

Christopher J. Lovegrove*, Katrina Bannigan

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

2 Citations (Scopus)
104 Downloads (Pure)


Anxiety is a common non-motor symptom of Parkinson’s and there is no specific pharmacological intervention for people with Parkinson’s who experience anxiety. Yet there is little specific research documenting how individuals with this condition experience anxiety. It is important to explore the experiences of people with Parkinson’s to identify potential issues in developing future non-pharmacological interventions. This study explored the lived experience of anxiety for people with Parkinson’s.
Materials and methods
Six participants were recruited into a descriptive phenomenological study, through the charity Parkinson’s UK, using a maximum variation sampling strategy. Face to face interviews were conducted. Data analysis employed thematic analysis.
Three key themes encapsulated the data: Finding ways to cope to “Try not to let it rule your life”, Amplifies symptoms “It’s emotionally draining it it’s also physically draining” and “Anxiety is a funny thing” experienced in myriad ways. A model of the experience of PWP experience of anxiety is proposed.
Anxiety is a complex experience constructed of interlinked parts affecting people with Parkinson’s in myriad ways. Researchers and healthcare professionals should take these findings into account when designing future studies and interventions.
Original languageEnglish
Article numbere0249390
Number of pages23
Issue number4
Publication statusPublished - 8 Apr 2021


  • anxiety
  • Parkinson’s
  • non-pharmacological interventions

ASJC Scopus subject areas

  • General


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