What is important in supporting self-management in community stroke rehabilitation? A Q methodology study

Julie Duncan Millar*, Helen Mason, Lisa Kidd

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

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Abstract

Purpose: Supported self-management (SSM) is an important part of adapting to life after stroke however it is a complex concept. It is unclear what SSM in stroke consists of or how stroke survivors, families, and clinicians can most effectively work together to support person-centred self-management. In this study, we aimed to explore what was most important in making SSM work in community stroke rehabilitation.
Methods: We conducted a Q-methodology study with stroke survivors (n ¼ 20), community-based stroke clinicians (n ¼ 20), and team managers (n ¼ 8) across four health boards in Scotland, United Kingdom. Participants ranked 32 statements according to their importance in making SSM work. Factor analysis was used to identify shared viewpoints.
Results: We identified four viewpoints: (i) A person-centred approach to build self-confidence and self-worth; (ii) Feeling heard, understood, and supported by everybody; (iii) Preparation of appropriate resources; and (iv) Right thing, right place, right time for the individual. Important across all viewpoints were: a trusting supportive relationship; working in partnership; focusing on meaningful goals; and building self-confidence.
Conclusions: Differing views exist on what is most important in SSM. These views could be used to inform quality improvement strategies to support the delivery of SSM that considers the preferences of stroke survivors.
Original languageEnglish
Number of pages9
JournalDisability and Rehabilitation
Early online date25 Jun 2022
DOIs
Publication statusE-pub ahead of print - 25 Jun 2022

Keywords

  • stroke
  • stroke rehabilitation
  • supported self-management
  • community stroke care
  • Q methodology

ASJC Scopus subject areas

  • Rehabilitation

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