What are the views of adults with an intellectual disability (AWID), carers and healthcare professionals on a community falls management programme for AWID: a qualitative interview study in the UK

Katie Robinson*, Phillipa Logan, Carol Tucker, Janet Finlayson, Veronika Van Der Wardt, Alice Kilby, Sue Knowles, Stevie Vanhegan, Stuart Hodgson, Nicola Lidstone

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

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Abstract

Objectives The aim of this study was to refine a draft of the ACTiON FALLS LD programme based on the views of adults with an intellectual disability (AWID), carers and healthcare professionals (HCPs). Design, setting and participants The semistructured interview study included HCP as well as AWID and carers supporting AWID living in the community. Community settings included sheltered living, supported living, AWID living at home with family carers or independently. The interview study explored the first draft of the ACTiON FALLS LD programme as well as the wider falls management for AWID. Interviews with AWID were developed to include a range of approaches (eg, case studies, pictures) to support inclusive participation. Individual interviews were digitally recorded and transcribed. Researcher notes were used during interviews with AWID. All data were analysed using the principles of framework analysis. Results 14 HCP, 8 carers and 13 AWID took part in the interview process. Five key themes were identified: programme components, programme design, programme approach, who would use the programme and programme delivery. Conclusions The views of AWID, HCP and carers showed the need to consider the impact of risk perception, anxiety and fear of falling in the adaption of the ACTiON FALLS programme. The programme needs to be accessible and support the inclusion of AWID in managing falls and ultimately fulfil the requirement for a proactive and educational tool by all.

Original languageEnglish
Article numbere069588
JournalBMJ Open
Volume14
Issue number2
DOIs
Publication statusPublished - 1 Feb 2024

Keywords

  • geriatric medicine
  • public health
  • rehabilitation medicine

ASJC Scopus subject areas

  • General Medicine

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