Views of young people with chronic conditions on transition from pediatric to adult health services

Jenni Hislop, Helen Mason, Jeremy R. Parr, Luke Vale, Allan Colver

Research output: Contribution to journalArticle

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Abstract

Purpose: This study sought to identify and describe the views of young people with chronic conditions about the transition from paediatric to adult services.
Methods: Q-methodology was used to identify young people’s views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from “strongly disagree” to “strongly agree”. Factor analysis was used to identify shared points of view (patterns of similarity between individual’s Q sorts).
Results: Four distinct views on transition were identified from young people: (1) “a laid-back view of transition;” (2) “anxiety about transition;” (3) “wanting independence and autonomy during transition;” and (4) “valuing social interaction with family, peers, and professionals to assist transition.”
Conclusions: Successful transition is likely to be influenced by how young people view the process. Discussing and understanding young people's views and preferences about transition should help clinicians and young people develop personalized planning for transition as a whole, and more specifically the point of transfer, leading to effective and efficient engagement with adult care.
Original languageEnglish
Pages (from-to)345-353
Number of pages9
JournalJournal of Adolescent Health
Volume59
Issue number3
Early online date8 Jun 2016
DOIs
Publication statusPublished - Sep 2016

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Q-Sort
Health Services
Pediatrics
Interpersonal Relations
Statistical Factor Analysis
Referral and Consultation
Anxiety
Health

Keywords

  • chronic conditions
  • Q methodology
  • transition
  • shared viewpoints

Cite this

Hislop, Jenni ; Mason, Helen ; Parr, Jeremy R. ; Vale, Luke ; Colver, Allan. / Views of young people with chronic conditions on transition from pediatric to adult health services. In: Journal of Adolescent Health. 2016 ; Vol. 59, No. 3. pp. 345-353.
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abstract = "Purpose: This study sought to identify and describe the views of young people with chronic conditions about the transition from paediatric to adult services.Methods: Q-methodology was used to identify young people’s views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from “strongly disagree” to “strongly agree”. Factor analysis was used to identify shared points of view (patterns of similarity between individual’s Q sorts).Results: Four distinct views on transition were identified from young people: (1) “a laid-back view of transition;” (2) “anxiety about transition;” (3) “wanting independence and autonomy during transition;” and (4) “valuing social interaction with family, peers, and professionals to assist transition.”Conclusions: Successful transition is likely to be influenced by how young people view the process. Discussing and understanding young people's views and preferences about transition should help clinicians and young people develop personalized planning for transition as a whole, and more specifically the point of transfer, leading to effective and efficient engagement with adult care.",
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Views of young people with chronic conditions on transition from pediatric to adult health services. / Hislop, Jenni; Mason, Helen; Parr, Jeremy R.; Vale, Luke; Colver, Allan.

In: Journal of Adolescent Health, Vol. 59, No. 3, 09.2016, p. 345-353.

Research output: Contribution to journalArticle

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N2 - Purpose: This study sought to identify and describe the views of young people with chronic conditions about the transition from paediatric to adult services.Methods: Q-methodology was used to identify young people’s views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from “strongly disagree” to “strongly agree”. Factor analysis was used to identify shared points of view (patterns of similarity between individual’s Q sorts).Results: Four distinct views on transition were identified from young people: (1) “a laid-back view of transition;” (2) “anxiety about transition;” (3) “wanting independence and autonomy during transition;” and (4) “valuing social interaction with family, peers, and professionals to assist transition.”Conclusions: Successful transition is likely to be influenced by how young people view the process. Discussing and understanding young people's views and preferences about transition should help clinicians and young people develop personalized planning for transition as a whole, and more specifically the point of transfer, leading to effective and efficient engagement with adult care.

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