Using Collaborative Autoethnography to Explore Medical Traumatic Stress in Adults with Congenital Craniofacial Conditions

Sally Smith*, Canice Crerand, Di Harcourt, Liza Morton, Nicola Stock

*Corresponding author for this work

Research output: Contribution to conferencePosterpeer-review

Abstract

Background and Aims: Adverse childhood experiences and psychological trauma, which includes experience of multiple medical procedures, are known to have long-term implications on those affected, increasing the risk of life-long chronic physical and mental health difficulties, adversely affecting relationships, educational performance, and employment. Despite its potential extensive impact, there remains a paucity of research into medical traumatic stress, particularly within the visible difference community. The aim of this research is to identify key points of risk and support needs in adults with experience of invasive medical treatment for craniofacial conditions.

Methods: The researcher has a syndromic craniofacial condition themselves and brings this lived experience to this research. Situated within a participatory action framework, this study utilises collaborative autoethnography to explore the researcher’s personal experience of medical treatment alongside other adults with craniofacial conditions. An analytical-interpretative, emancipatory research approach will be adopted to investigate shared stories. As the stories are voiced or written, and personal artefacts gathered from collaborators and the researcher, data will be analysed utilising hermeneutic phenomenological analysis.

Findings: Preliminary findings of the study will be shared, alongside reflections on the utility of the collaborative autoethnography process as a research method in the field of visible difference.

Discussion: Providing a deeper understanding of the treatment experiences of people with visible difference and the impact of medical traumatic stress, the results of this research will have important implications for the development of effective psychologically informed clinical interventions and support services.
Original languageEnglish
Publication statusPublished - 13 Jun 2024
Event10th Appearance Matters Conference - City Hall, Bristol, United Kingdom
Duration: 11 Jun 202413 Jun 2024
https://www.uwe.ac.uk/research/centres-and-groups/appearance/news-and-events/am-conference (Link to conference website)

Conference

Conference10th Appearance Matters Conference
Abbreviated titleAM10
Country/TerritoryUnited Kingdom
CityBristol
Period11/06/2413/06/24
Internet address

Keywords

  • medical trauma

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