Sexual health and well-being in adults with congenital heart disease: a international society of adult congenital heart disease statement

Lorna  Swan; Jonathan Windram; Luke Burchill; Laila Akbar Ladak; Leigh C. Reardon; Beatriz Fernandez; Roni M. Jacobsen; Maggie Simpson; David Harrison; Liza Morton

doi:10.1016/j.jacadv.2023.100716

Sexual health and well-being in adults with congenital heart disease: a international society of adult congenital heart disease statement

Lorna Swan^*, Jonathan Windram, Luke Burchill, Laila Akbar Ladak, Leigh C. Reardon, Beatriz Fernandez, Roni M. Jacobsen, Maggie Simpson, David Harrison, Liza Morton

^*Corresponding author for this work

Psychology

Research output: Contribution to journal › Review article › peer-review

3 Citations (Scopus)

112 Downloads (Pure)

Abstract

As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.

Original language	English
Article number	100716
Journal	Journal American College of Cardiology: Advances
Volume	2
Issue number	10
Early online date	18 Nov 2023
DOIs	https://doi.org/10.1016/j.jacadv.2023.100716 https://doi.org/10.1016/j.jacadv.2023.100716
Publication status	Published - Dec 2023

Keywords

adult congenital heart disease
sexual health
advocacy
contraception
gender

ASJC Scopus subject areas

Cardiology and Cardiovascular Medicine
Dentistry (miscellaneous)

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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Final published versionFinal published version, 1.28 MBLicence: CC BY

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4 Article
2 Web publication/site
1 Book
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A new measure of feeling safe: developing psychometric properties of the neuroception of psychological safety scale (NPSS)
Morton, L., Cogan, N., Kolacz, J., Calderwood, C., Nikolic, M., Bacon, T., Pathe, E., Williams, D. & Porges, S. W., May 2024, In: Psychological Trauma: Theory, Research, Practice, and Policy. 16, 4, p. 701-708 8 p.
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Blog: A win for patient involvement: congenital heart disease standards in Scotland
Morton, L., 14 Feb 2024
Research output: Non-textual form › Web publication/site
Blog: Congenital heart disease standards – bridging the gap between physical and mental health
Morton, L., 14 Feb 2024
Research output: Non-textual form › Web publication/site

Cite this

Swan, L., Windram, J., Burchill, L., Ladak, L. A., Reardon, L. C., Fernandez, B., Jacobsen, R. M., Simpson, M., Harrison, D., & Morton, L. (2023). Sexual health and well-being in adults with congenital heart disease: a international society of adult congenital heart disease statement. Journal American College of Cardiology: Advances , 2(10), Article 100716. https://doi.org/10.1016/j.jacadv.2023.100716, https://doi.org/10.1016/j.jacadv.2023.100716

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title = "Sexual health and well-being in adults with congenital heart disease: a international society of adult congenital heart disease statement",

abstract = "As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.",

keywords = "adult congenital heart disease, sexual health, advocacy, contraception, gender",

author = "Lorna Swan and Jonathan Windram and Luke Burchill and Ladak, {Laila Akbar} and Reardon, {Leigh C.} and Beatriz Fernandez and Jacobsen, {Roni M.} and Maggie Simpson and David Harrison and Liza Morton",

year = "2023",

month = dec,

doi = "10.1016/j.jacadv.2023.100716",

language = "English",

volume = "2",

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Swan, L, Windram, J, Burchill, L, Ladak, LA, Reardon, LC, Fernandez, B, Jacobsen, RM, Simpson, M, Harrison, D & Morton, L 2023, 'Sexual health and well-being in adults with congenital heart disease: a international society of adult congenital heart disease statement', Journal American College of Cardiology: Advances , vol. 2, no. 10, 100716. https://doi.org/10.1016/j.jacadv.2023.100716, https://doi.org/10.1016/j.jacadv.2023.100716

TY - JOUR

T1 - Sexual health and well-being in adults with congenital heart disease: a international society of adult congenital heart disease statement

AU - Swan, Lorna

AU - Windram, Jonathan

AU - Burchill, Luke

AU - Ladak, Laila Akbar

AU - Reardon, Leigh C.

AU - Fernandez, Beatriz

AU - Jacobsen, Roni M.

AU - Simpson, Maggie

AU - Harrison, David

AU - Morton, Liza

PY - 2023/12

Y1 - 2023/12

N2 - As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.

AB - As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although health care has embraced this, there are still areas where there is a deficit in advice, allyship, and advocacy. One of these deficits is in the area of sexual health and well-being. A healthy sexual life has a myriad of physical and psychosocial benefits. However, individuals with adult congenital heart disease may have significant barriers to achieving well-being in this aspect of their lives. These barriers and their potential solutions are outlined in this paper.

KW - adult congenital heart disease

KW - sexual health

KW - advocacy

KW - contraception

KW - gender

U2 - 10.1016/j.jacadv.2023.100716

DO - 10.1016/j.jacadv.2023.100716

M3 - Review article

C2 - 38938496

VL - 2

JO - Journal American College of Cardiology: Advances

JF - Journal American College of Cardiology: Advances

IS - 10

M1 - 100716

ER -

Sexual health and well-being in adults with congenital heart disease: a international society of adult congenital heart disease statement

Abstract

Keywords

ASJC Scopus subject areas

UN SDGs

Documents and Links

Fingerprint

Research output

A new measure of feeling safe: developing psychometric properties of the neuroception of psychological safety scale (NPSS)

Blog: A win for patient involvement: congenital heart disease standards in Scotland

Blog: Congenital heart disease standards – bridging the gap between physical and mental health

Cite this