Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study

Janet Finlayson; Leyla De Amicis; Stephen  Gallacher; Robin Munro; Jennifer Crockett; Jon Godwin; Wendy Feeney; Dawn A. Skelton

doi:10.1111/jar.12526

Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study

Janet Finlayson^*, Leyla De Amicis, Stephen Gallacher, Robin Munro, Jennifer Crockett, Jon Godwin, Wendy Feeney, Dawn A. Skelton

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

3 Citations (Scopus)

153 Downloads (Pure)

Abstract

Background: People with intellectual disabilities are a high risk population for developing osteoporosis and fragility fractures, yet they experience barriers to accessing dual-energy x-ray absorptiometry (DXA) bone mineral density (BMD) screening and fracture assessment. Reasonable adjustments are a statutory requirement in the UK, but there is a paucity of evidence-based examples to assist their identification, implementation and evaluation.

Method: Thirty adults with intellectual disabilities underwent DXA BMD screening and fracture risk assessment. Reasonable adjustments were identified and implemented.

Results: The presence of osteopenia or osteoporosis was detected in 23 out of 29 (79%) participants. Osteoporosis professionals report that 17 of 18 reasonable adjustments identified and implemented are both important and easy to implement.

Conclusion: Adults across all levels of intellectual disabilities can complete DXA BMD screening with reasonable adjustments. Widely implementing these reasonable adjustments would contribute to reducing inequalities in health care for adults with intellectual disabilities.

Original language	English
Pages (from-to)	300-312
Number of pages	13
Journal	Journal of Applied Research in Intellectual Disabilities
Volume	32
Issue number	2
Early online date	2 Sept 2018
DOIs	https://doi.org/10.1111/jar.12526
Publication status	Published - Mar 2019

Keywords

intellectual disabilities
osteoporosis
reasonable adjustments

ASJC Scopus subject areas

Education
Developmental and Educational Psychology

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10.1111/jar.12526

Finlayson, J. et al (2018) Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study
This is the peer reviewed version of the following article: Finlayson J, De Amicis L, Gallacher S, et al. Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: A feasibility study. J Appl Res Intellect Disabil. 2018;00:1–13., which has been published in final form at https://doi.org/10.1111/jar.12526 This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
Author accepted manuscript, 590 KB

Janet Finlayson
- jfi3gcu.acuk
- Nursing - Senior Research Fellow
Person

Cite this

Finlayson, J., De Amicis, L., Gallacher, S., Munro, R., Crockett, J., Godwin, J., Feeney, W., & Skelton, D. A. (2019). Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study. Journal of Applied Research in Intellectual Disabilities, 32(2), 300-312. https://doi.org/10.1111/jar.12526

@article{46cb1e88e5c945299c4d65a17656923c,

title = "Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study",

abstract = "Background: People with intellectual disabilities are a high risk population for developing osteoporosis and fragility fractures, yet they experience barriers to accessing dual-energy x-ray absorptiometry (DXA) bone mineral density (BMD) screening and fracture assessment. Reasonable adjustments are a statutory requirement in the UK, but there is a paucity of evidence-based examples to assist their identification, implementation and evaluation.Method: Thirty adults with intellectual disabilities underwent DXA BMD screening and fracture risk assessment. Reasonable adjustments were identified and implemented.Results: The presence of osteopenia or osteoporosis was detected in 23 out of 29 (79%) participants. Osteoporosis professionals report that 17 of 18 reasonable adjustments identified and implemented are both important and easy to implement.Conclusion: Adults across all levels of intellectual disabilities can complete DXA BMD screening with reasonable adjustments. Widely implementing these reasonable adjustments would contribute to reducing inequalities in health care for adults with intellectual disabilities.",

keywords = "intellectual disabilities, osteoporosis, reasonable adjustments",

author = "Janet Finlayson and {De Amicis}, Leyla and Stephen Gallacher and Robin Munro and Jennifer Crockett and Jon Godwin and Wendy Feeney and Skelton, {Dawn A.}",

note = "Acceptance from webpage AAM: 24 months embargo exceeds A/B ET 26/9/18 but otherwise compliant in Pure. Author confirmed exception with email in SAN. ET 3/10/18",

year = "2019",

month = mar,

doi = "10.1111/jar.12526",

language = "English",

volume = "32",

pages = "300--312",

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Finlayson, J, De Amicis, L, Gallacher, S, Munro, R, Crockett, J, Godwin, J, Feeney, W & Skelton, DA 2019, 'Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study', Journal of Applied Research in Intellectual Disabilities, vol. 32, no. 2, pp. 300-312. https://doi.org/10.1111/jar.12526

Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study. / Finlayson, Janet; De Amicis, Leyla; Gallacher, Stephen et al.
In: Journal of Applied Research in Intellectual Disabilities, Vol. 32, No. 2, 03.2019, p. 300-312.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study

AU - Finlayson, Janet

AU - De Amicis, Leyla

AU - Gallacher, Stephen

AU - Munro, Robin

AU - Crockett, Jennifer

AU - Godwin, Jon

AU - Feeney, Wendy

AU - Skelton, Dawn A.

N1 - Acceptance from webpage AAM: 24 months embargo exceeds A/B ET 26/9/18 but otherwise compliant in Pure. Author confirmed exception with email in SAN. ET 3/10/18

PY - 2019/3

Y1 - 2019/3

N2 - Background: People with intellectual disabilities are a high risk population for developing osteoporosis and fragility fractures, yet they experience barriers to accessing dual-energy x-ray absorptiometry (DXA) bone mineral density (BMD) screening and fracture assessment. Reasonable adjustments are a statutory requirement in the UK, but there is a paucity of evidence-based examples to assist their identification, implementation and evaluation.Method: Thirty adults with intellectual disabilities underwent DXA BMD screening and fracture risk assessment. Reasonable adjustments were identified and implemented.Results: The presence of osteopenia or osteoporosis was detected in 23 out of 29 (79%) participants. Osteoporosis professionals report that 17 of 18 reasonable adjustments identified and implemented are both important and easy to implement.Conclusion: Adults across all levels of intellectual disabilities can complete DXA BMD screening with reasonable adjustments. Widely implementing these reasonable adjustments would contribute to reducing inequalities in health care for adults with intellectual disabilities.

AB - Background: People with intellectual disabilities are a high risk population for developing osteoporosis and fragility fractures, yet they experience barriers to accessing dual-energy x-ray absorptiometry (DXA) bone mineral density (BMD) screening and fracture assessment. Reasonable adjustments are a statutory requirement in the UK, but there is a paucity of evidence-based examples to assist their identification, implementation and evaluation.Method: Thirty adults with intellectual disabilities underwent DXA BMD screening and fracture risk assessment. Reasonable adjustments were identified and implemented.Results: The presence of osteopenia or osteoporosis was detected in 23 out of 29 (79%) participants. Osteoporosis professionals report that 17 of 18 reasonable adjustments identified and implemented are both important and easy to implement.Conclusion: Adults across all levels of intellectual disabilities can complete DXA BMD screening with reasonable adjustments. Widely implementing these reasonable adjustments would contribute to reducing inequalities in health care for adults with intellectual disabilities.

KW - intellectual disabilities

KW - osteoporosis

KW - reasonable adjustments

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M3 - Article

SN - 1360-2322

VL - 32

SP - 300

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JO - Journal of Applied Research in Intellectual Disabilities

JF - Journal of Applied Research in Intellectual Disabilities

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Finlayson J, De Amicis L, Gallacher S, Munro R, Crockett J, Godwin J et al. Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study. Journal of Applied Research in Intellectual Disabilities. 2019 Mar;32(2):300-312. Epub 2018 Sept 2. doi: 10.1111/jar.12526

Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study

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