Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study

Janet Finlayson, Leyla De Amicis, Stephen Gallacher, Robin Munro, Jennifer Crockett, Jon Godwin, Wendy Feeney, Dawn A. Skelton

Research output: Contribution to journalArticle

Abstract

Background: People with intellectual disabilities are a high risk population for developing osteoporosis and fragility fractures, yet they experience barriers to accessing dual-energy x-ray absorptiometry (DXA) bone mineral density (BMD) screening and fracture assessment. Reasonable adjustments are a statutory requirement in the UK, but there is a paucity of evidence-based examples to assist their identification, implementation and evaluation.
Method: Thirty adults with intellectual disabilities underwent DXA BMD screening and fracture risk assessment. Reasonable adjustments were identified and implemented.
Results: The presence of osteopenia or osteoporosis was detected in 23 out of 29 (79%) participants. Osteoporosis professionals report that 17 of 18 reasonable adjustments identified and implemented are both important and easy to implement.
Conclusion: Adults across all levels of intellectual disabilities can complete DXA BMD screening with reasonable adjustments. Widely implementing these reasonable adjustments would contribute to reducing inequalities in health care for adults with intellectual disabilities.
Original languageEnglish
Pages (from-to)1-13
Number of pages13
JournalJournal of Applied Research in Intellectual Disabilities
Volume32
Issue number2
Early online date2 Sep 2018
DOIs
Publication statusPublished - Mar 2019

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Social Adjustment
bone disease
Feasibility Studies
Intellectual Disability
Osteoporosis
disability
Bone Density
energy
X-Rays
Healthcare Disparities
Therapeutics
risk assessment
Metabolic Bone Diseases
Disabled Persons
health care
evaluation
evidence
experience
Population

Keywords

  • intellectual disabilities
  • osteoporosis
  • reasonable adjustments

Cite this

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title = "Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study",
abstract = "Background: People with intellectual disabilities are a high risk population for developing osteoporosis and fragility fractures, yet they experience barriers to accessing dual-energy x-ray absorptiometry (DXA) bone mineral density (BMD) screening and fracture assessment. Reasonable adjustments are a statutory requirement in the UK, but there is a paucity of evidence-based examples to assist their identification, implementation and evaluation.Method: Thirty adults with intellectual disabilities underwent DXA BMD screening and fracture risk assessment. Reasonable adjustments were identified and implemented.Results: The presence of osteopenia or osteoporosis was detected in 23 out of 29 (79{\%}) participants. Osteoporosis professionals report that 17 of 18 reasonable adjustments identified and implemented are both important and easy to implement.Conclusion: Adults across all levels of intellectual disabilities can complete DXA BMD screening with reasonable adjustments. Widely implementing these reasonable adjustments would contribute to reducing inequalities in health care for adults with intellectual disabilities.",
keywords = "intellectual disabilities, osteoporosis, reasonable adjustments",
author = "Janet Finlayson and {De Amicis}, Leyla and Stephen Gallacher and Robin Munro and Jennifer Crockett and Jon Godwin and Wendy Feeney and Skelton, {Dawn A.}",
note = "Acceptance from webpage AAM: 24 months embargo exceeds A/B ET 26/9/18 but otherwise compliant in Pure. Author confirmed exception with email in SAN. ET 3/10/18",
year = "2019",
month = "3",
doi = "10.1111/jar.12526",
language = "English",
volume = "32",
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journal = "Journal of Applied Research in Intellectual Disabilities",
issn = "1360-2322",
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TY - JOUR

T1 - Reasonable adjustments to provide equitable and inclusive assessment, screening and treatment of osteoporosis for adults with intellectual disabilities: a feasibility study

AU - Finlayson, Janet

AU - De Amicis, Leyla

AU - Gallacher, Stephen

AU - Munro, Robin

AU - Crockett, Jennifer

AU - Godwin, Jon

AU - Feeney, Wendy

AU - Skelton, Dawn A.

N1 - Acceptance from webpage AAM: 24 months embargo exceeds A/B ET 26/9/18 but otherwise compliant in Pure. Author confirmed exception with email in SAN. ET 3/10/18

PY - 2019/3

Y1 - 2019/3

N2 - Background: People with intellectual disabilities are a high risk population for developing osteoporosis and fragility fractures, yet they experience barriers to accessing dual-energy x-ray absorptiometry (DXA) bone mineral density (BMD) screening and fracture assessment. Reasonable adjustments are a statutory requirement in the UK, but there is a paucity of evidence-based examples to assist their identification, implementation and evaluation.Method: Thirty adults with intellectual disabilities underwent DXA BMD screening and fracture risk assessment. Reasonable adjustments were identified and implemented.Results: The presence of osteopenia or osteoporosis was detected in 23 out of 29 (79%) participants. Osteoporosis professionals report that 17 of 18 reasonable adjustments identified and implemented are both important and easy to implement.Conclusion: Adults across all levels of intellectual disabilities can complete DXA BMD screening with reasonable adjustments. Widely implementing these reasonable adjustments would contribute to reducing inequalities in health care for adults with intellectual disabilities.

AB - Background: People with intellectual disabilities are a high risk population for developing osteoporosis and fragility fractures, yet they experience barriers to accessing dual-energy x-ray absorptiometry (DXA) bone mineral density (BMD) screening and fracture assessment. Reasonable adjustments are a statutory requirement in the UK, but there is a paucity of evidence-based examples to assist their identification, implementation and evaluation.Method: Thirty adults with intellectual disabilities underwent DXA BMD screening and fracture risk assessment. Reasonable adjustments were identified and implemented.Results: The presence of osteopenia or osteoporosis was detected in 23 out of 29 (79%) participants. Osteoporosis professionals report that 17 of 18 reasonable adjustments identified and implemented are both important and easy to implement.Conclusion: Adults across all levels of intellectual disabilities can complete DXA BMD screening with reasonable adjustments. Widely implementing these reasonable adjustments would contribute to reducing inequalities in health care for adults with intellectual disabilities.

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KW - reasonable adjustments

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