Protocol for the development of guidance for stakeholder engagement in health and healthcare guideline development and implementation

Jennifer Petkovic*, Alison Riddle, Elie A. Akl, Joanne Khabsa, Lyubov Lytvyn, Pearl Atwere, Pauline Campbell, Kalipso Chalkidou, Stephanie M. Chang, Sally Crowe, Leonila Dans, Fadi El Jardali, Davina Ghersi, Ian D. Graham, Sean Grant, Regina Greer-Smith, Jeanne-Marie Guise, Glen Hazlewood, Janet Jull, S. Vittal KatikireddiEtienne V. Langlois, Anne Lyddiatt, Lara Maxwell, Richard Morley, Reem A. Mustafa, Francesco Nonino, Jordi Pardo Pardo, Alex Pollock, Kevin Pottie, John Riva, Holger Schünemann, Rosiane Simeon, Maureen Smith, Airton T. Stein, Anneliese Synnot, Janice Tufte, Howard White, Vivian Welch, Thomas W. Concannon, Peter Tugwell

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

116 Citations (Scopus)
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Abstract

Background: Stakeholder engagement has become widely accepted as a necessary component of guideline development and implementation. While frameworks for developing guidelines express the need for those potentially affected by guideline recommendations to be involved in their development, there is a lack of consensus on how this should be done in practice. Further, there is a lack of guidance on how to equitably and meaningfully engage multiple stakeholders. We aim to develop guidance for the meaningful and equitable engagement of multiple stakeholders in guideline development and implementation.
Methods: This will be a multi-stage project. The first stage is to conduct a series of four systematic reviews. These will (1) describe existing guidance and methods for stakeholder engagement in guideline development and implementation, (2) characterize barriers and facilitators to stakeholder engagement in guideline development and implementation, (3) explore the impact of stakeholder engagement on guideline development and implementation, and (4) identify issues related to conflicts of interest when engaging multiple stakeholders in guideline development and implementation.
Discussion: We will collaborate with our multiple and diverse stakeholders to develop guidance for multi-stakeholder engagement in guideline development and implementation. We will use the results of the systematic reviews to develop a candidate list of draft guidance recommendations and will seek broad feedback on the draft guidance via an online survey of guideline developers and external stakeholders. An invited group of representatives from all stakeholder groups will discuss the results of the survey at a consensus meeting which will inform the development of the final guidance papers.
Our overall goal is to improve the development of guidelines through meaningful and equitable multi-stakeholder engagement, and subsequently to improve health outcomes and reduce inequities in health.
Original languageEnglish
Article number21
Pages (from-to)21
Number of pages11
JournalSystematic Reviews
Volume9
Issue number1
DOIs
Publication statusPublished - 1 Feb 2020

Keywords

  • guidelines
  • stakeholder engagement
  • coproduction
  • systematic reviews
  • guidance
  • equity
  • integrated knowledge translation

ASJC Scopus subject areas

  • Medicine (miscellaneous)

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