People with aphasia: capacity to consent, research participation and intervention inequalities

Marian Brady, Alex Frederick, Brian Williams

Research output: Contribution to journalArticle

Abstract

Of 14 randomized controlled trials included in the recent Cochrane review of the evidence relating to information provision after stroke, only one included people with aphasia with the remainder either excluding this patient sub-group (10/14 trials) or failing to report any exclusion criteria. A third of people that experience a stroke will also experience aphasia, affecting their speaking, understanding, reading, and writing. The pervasive supposition that people with aphasia lack the capacity to make decisions for themselves is flawed and has the potential to lead to inequalities in care. We highlight the degree to which people with aphasia have been excluded from full participation in some areas of stroke research and the potential clinical consequences of their systematic exclusion.
Original languageEnglish
Pages (from-to)193–196
Number of pages4
JournalInternational Journal of Stroke
Volume8
Issue number3
DOIs
Publication statusPublished - Apr 2013

Fingerprint

Aphasia
Stroke
Research
Reading
Randomized Controlled Trials

Keywords

  • aphasia
  • stroke

Cite this

@article{6ea9f07a1eee418b90d0f1cb2922fde7,
title = "People with aphasia: capacity to consent, research participation and intervention inequalities",
abstract = "Of 14 randomized controlled trials included in the recent Cochrane review of the evidence relating to information provision after stroke, only one included people with aphasia with the remainder either excluding this patient sub-group (10/14 trials) or failing to report any exclusion criteria. A third of people that experience a stroke will also experience aphasia, affecting their speaking, understanding, reading, and writing. The pervasive supposition that people with aphasia lack the capacity to make decisions for themselves is flawed and has the potential to lead to inequalities in care. We highlight the degree to which people with aphasia have been excluded from full participation in some areas of stroke research and the potential clinical consequences of their systematic exclusion.",
keywords = "aphasia, stroke",
author = "Marian Brady and Alex Frederick and Brian Williams",
year = "2013",
month = "4",
doi = "10.1111/j.1747-4949.2012.00900.x",
language = "English",
volume = "8",
pages = "193–196",
journal = "International Journal of Stroke",
issn = "1747-4930",
publisher = "SAGE Publications Ltd",
number = "3",

}

People with aphasia: capacity to consent, research participation and intervention inequalities. / Brady, Marian; Frederick, Alex; Williams, Brian.

In: International Journal of Stroke, Vol. 8, No. 3, 04.2013, p. 193–196.

Research output: Contribution to journalArticle

TY - JOUR

T1 - People with aphasia: capacity to consent, research participation and intervention inequalities

AU - Brady, Marian

AU - Frederick, Alex

AU - Williams, Brian

PY - 2013/4

Y1 - 2013/4

N2 - Of 14 randomized controlled trials included in the recent Cochrane review of the evidence relating to information provision after stroke, only one included people with aphasia with the remainder either excluding this patient sub-group (10/14 trials) or failing to report any exclusion criteria. A third of people that experience a stroke will also experience aphasia, affecting their speaking, understanding, reading, and writing. The pervasive supposition that people with aphasia lack the capacity to make decisions for themselves is flawed and has the potential to lead to inequalities in care. We highlight the degree to which people with aphasia have been excluded from full participation in some areas of stroke research and the potential clinical consequences of their systematic exclusion.

AB - Of 14 randomized controlled trials included in the recent Cochrane review of the evidence relating to information provision after stroke, only one included people with aphasia with the remainder either excluding this patient sub-group (10/14 trials) or failing to report any exclusion criteria. A third of people that experience a stroke will also experience aphasia, affecting their speaking, understanding, reading, and writing. The pervasive supposition that people with aphasia lack the capacity to make decisions for themselves is flawed and has the potential to lead to inequalities in care. We highlight the degree to which people with aphasia have been excluded from full participation in some areas of stroke research and the potential clinical consequences of their systematic exclusion.

KW - aphasia

KW - stroke

U2 - 10.1111/j.1747-4949.2012.00900.x

DO - 10.1111/j.1747-4949.2012.00900.x

M3 - Article

VL - 8

SP - 193

EP - 196

JO - International Journal of Stroke

JF - International Journal of Stroke

SN - 1747-4930

IS - 3

ER -