Key issues for stakeholder engagement in the development of health and healthcare guidelines

Jennifer Petkovic; Olivia Magwood; Lyubov Lytvyn; Joanne Khabas; Thomas W. Concannon; Vivian Welch; Alex Todhunter-Brown; Marisha E. Palm; Elie A. Akl; Lawrence Mbuagbaw; Thurayya Arayssi; Marc T. Avey; Ana Marusic; Richard Morley; Michael Saginur; Nevilene Slingers; Ligia Texeira; Asma Ben Brahem; Soumyadeep Bhaumik; Imad Bou Akl; Sally Crowe; Laura Dormer; Comfort Ekanem; Eddy Lang; Behrang Kianzad; Tanja Kuchenmüller; Lorenzo Moja; Kevin Pottie; Holger Schünemann; Peter Tugwell

doi:10.1186/s40900-023-00433-6

Key issues for stakeholder engagement in the development of health and healthcare guidelines

Jennifer Petkovic^*, Olivia Magwood, Lyubov Lytvyn, Joanne Khabas, Thomas W. Concannon, Vivian Welch, Alex Todhunter-Brown, Marisha E. Palm, Elie A. Akl, Lawrence Mbuagbaw, Thurayya Arayssi, Marc T. Avey, Ana Marusic, Richard Morley, Michael Saginur, Nevilene Slingers, Ligia Texeira, Asma Ben Brahem, Soumyadeep Bhaumik, Imad Bou AklSally Crowe, Laura Dormer, Comfort Ekanem, Eddy Lang, Behrang Kianzad, Tanja Kuchenmüller, Lorenzo Moja, Kevin Pottie, Holger Schünemann, Peter Tugwell

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

14 Citations (Scopus)

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Abstract

Established in 2015, the Multi-Stakeholder Engagement (MuSE) Consortium is an international network of over 120 individuals interested in stakeholder engagement in research and guidelines. The MuSE group is developing guidance for stakeholder engagement in the development of health and healthcare guideline development. The development of this guidance has included multiple meetings with stakeholders, including patients, payers/purchasers of health services, peer review editors, policymakers, program managers, providers, principal investigators, product makers, the public, and purchasers of health services and has identified a number of key issues. These include: (1) Definitions, roles, and settings (2) Stakeholder identification and selection (3) Levels of engagement, (4) Evaluation of engagement, (5) Documentation and transparency, and (6) Conflict of interest management. In this paper, we discuss these issues and our plan to develop guidance to facilitate stakeholder engagement in all stages of the development of health and healthcare guideline development.

Original language	English
Article number	27
Number of pages	10
Journal	Research Involvement and Engagement
Volume	9
Issue number	1
DOIs	https://doi.org/10.1186/s40900-023-00433-6
Publication status	Published - 28 Apr 2023

Keywords

Guideline development
Stakeholder engagement
Patient and public involvement

ASJC Scopus subject areas

Health(social science)
General Health Professions

Documents and Links

10.1186/s40900-023-00433-6

Petkovic, J. et al (2023) Key issues for stakeholder engagement in the development of health and healthcare guidelines
© The Author(s) 2023. Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.
Final published version, 1.16 MBLicence: CC BY

Cite this

Petkovic, J., Magwood, O., Lytvyn, L., Khabas, J., Concannon, T. W., Welch, V., Todhunter-Brown, A., Palm, M. E., Akl, E. A., Mbuagbaw, L., Arayssi, T., Avey, M. T., Marusic, A., Morley, R., Saginur, M., Slingers, N., Texeira, L., Brahem, A. B., Bhaumik, S., ... Tugwell, P. (2023). Key issues for stakeholder engagement in the development of health and healthcare guidelines. Research Involvement and Engagement, 9(1), Article 27. https://doi.org/10.1186/s40900-023-00433-6

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abstract = "Established in 2015, the Multi-Stakeholder Engagement (MuSE) Consortium is an international network of over 120 individuals interested in stakeholder engagement in research and guidelines. The MuSE group is developing guidance for stakeholder engagement in the development of health and healthcare guideline development. The development of this guidance has included multiple meetings with stakeholders, including patients, payers/purchasers of health services, peer review editors, policymakers, program managers, providers, principal investigators, product makers, the public, and purchasers of health services and has identified a number of key issues. These include: (1) Definitions, roles, and settings (2) Stakeholder identification and selection (3) Levels of engagement, (4) Evaluation of engagement, (5) Documentation and transparency, and (6) Conflict of interest management. In this paper, we discuss these issues and our plan to develop guidance to facilitate stakeholder engagement in all stages of the development of health and healthcare guideline development.",

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author = "Jennifer Petkovic and Olivia Magwood and Lyubov Lytvyn and Joanne Khabas and Concannon, {Thomas W.} and Vivian Welch and Alex Todhunter-Brown and Palm, {Marisha E.} and Akl, {Elie A.} and Lawrence Mbuagbaw and Thurayya Arayssi and Avey, {Marc T.} and Ana Marusic and Richard Morley and Michael Saginur and Nevilene Slingers and Ligia Texeira and Brahem, {Asma Ben} and Soumyadeep Bhaumik and Akl, {Imad Bou} and Sally Crowe and Laura Dormer and Comfort Ekanem and Eddy Lang and Behrang Kianzad and Tanja Kuchenm{\"u}ller and Lorenzo Moja and Kevin Pottie and Holger Sch{\"u}nemann and Peter Tugwell",

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Petkovic, J, Magwood, O, Lytvyn, L, Khabas, J, Concannon, TW, Welch, V, Todhunter-Brown, A, Palm, ME, Akl, EA, Mbuagbaw, L, Arayssi, T, Avey, MT, Marusic, A, Morley, R, Saginur, M, Slingers, N, Texeira, L, Brahem, AB, Bhaumik, S, Akl, IB, Crowe, S, Dormer, L, Ekanem, C, Lang, E, Kianzad, B, Kuchenmüller, T, Moja, L, Pottie, K, Schünemann, H & Tugwell, P 2023, 'Key issues for stakeholder engagement in the development of health and healthcare guidelines', Research Involvement and Engagement, vol. 9, no. 1, 27. https://doi.org/10.1186/s40900-023-00433-6

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AU - Petkovic, Jennifer

AU - Magwood, Olivia

AU - Lytvyn, Lyubov

AU - Khabas, Joanne

AU - Concannon, Thomas W.

AU - Welch, Vivian

AU - Todhunter-Brown, Alex

AU - Palm, Marisha E.

AU - Akl, Elie A.

AU - Mbuagbaw, Lawrence

AU - Arayssi, Thurayya

AU - Avey, Marc T.

AU - Marusic, Ana

AU - Morley, Richard

AU - Saginur, Michael

AU - Slingers, Nevilene

AU - Texeira, Ligia

AU - Brahem, Asma Ben

AU - Bhaumik, Soumyadeep

AU - Akl, Imad Bou

AU - Crowe, Sally

AU - Dormer, Laura

AU - Ekanem, Comfort

AU - Lang, Eddy

AU - Kianzad, Behrang

AU - Kuchenmüller, Tanja

AU - Moja, Lorenzo

AU - Pottie, Kevin

AU - Schünemann, Holger

AU - Tugwell, Peter

PY - 2023/4/28

Y1 - 2023/4/28

N2 - Established in 2015, the Multi-Stakeholder Engagement (MuSE) Consortium is an international network of over 120 individuals interested in stakeholder engagement in research and guidelines. The MuSE group is developing guidance for stakeholder engagement in the development of health and healthcare guideline development. The development of this guidance has included multiple meetings with stakeholders, including patients, payers/purchasers of health services, peer review editors, policymakers, program managers, providers, principal investigators, product makers, the public, and purchasers of health services and has identified a number of key issues. These include: (1) Definitions, roles, and settings (2) Stakeholder identification and selection (3) Levels of engagement, (4) Evaluation of engagement, (5) Documentation and transparency, and (6) Conflict of interest management. In this paper, we discuss these issues and our plan to develop guidance to facilitate stakeholder engagement in all stages of the development of health and healthcare guideline development.

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KW - Guideline development

KW - Stakeholder engagement

KW - Patient and public involvement

U2 - 10.1186/s40900-023-00433-6

DO - 10.1186/s40900-023-00433-6

M3 - Article

C2 - 37118762

SN - 2056-7529

VL - 9

JO - Research Involvement and Engagement

JF - Research Involvement and Engagement

IS - 1

M1 - 27

ER -

Key issues for stakeholder engagement in the development of health and healthcare guidelines

Abstract

Keywords

ASJC Scopus subject areas

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