TY - JOUR
T1 - An aphasia research agenda – a consensus statement from the collaboration of aphasia trialists
AU - Ali, Myzoon
AU - Soroli, Efstathia
AU - Jesus, Luis M.T.
AU - Cruice, Madeline
AU - Isaksen, Jytte
AU - Visch-Brink, Evy
AU - Grohmann, Kleanthes K.
AU - Jagoe, C.
AU - Kukkonen, Tarja
AU - Varlokosta, Spyridoula
AU - Hernandez-Sacristan, Carlos
AU - Rosell-Clari, Vicente
AU - Palmer, Rebecca
AU - Martinez-Ferreiro, Sylvia
AU - Godecke, Erin
AU - Wallace, Sarah J.
AU - McMenamin, Ruth
AU - Copland, David
AU - Breitenstein, Caterina
AU - Bowen, Audrey
AU - Laska, Ann-Charlotte
AU - Hilari, Katerina
AU - Brady, Marian C.
AU - Collaboration of Aphasia Trialists (CATs)
PY - 2022/3/3
Y1 - 2022/3/3
N2 - Coordination ofinternational aphasia research would minimise duplication of effort, supportsynergistic international activities across languages and multidisciplinaryperspectives, and promote high-quality conduct and reporting of aphasiaresearch, thereby increasing the relevance, transparency, and implementation offindings. The Collaboration of Aphasia Trialists (CATs) sought to develop anaphasia research agenda to direct future research activities, based onpriorities shared by people with aphasia, family members, and healthcareprofessionals. Our established international research network spanning 33countries contributed to this activity. Research literature reporting thepriorities of stakeholders was reviewed and synthesized (phase 1).Representatives from Working Groups on Aphasia Assessment & Outcomes,Prognosis & Predictors of Recovery, Effectiveness of Interventions, andSocietal Impact & Reintegration participated in a two-day researchagenda-setting meeting. The CATs expert panel refined research objectives andidentified constituent components of research and methodological developmentsrequired to address these research components. The objectives and researchcomponents were grouped into overarching themes (phase 2). The resultant listwas then circulated to more than 180 CATs members for review, revision, andapproval. Consensus on the final aphasia research agenda and roadmap wasreached by CATs executive committee (phase 3). The expert panel identified fiveoverarching research themes: (i) evidence-based interventions for people withaphasia, (ii) effective interventions to support those communicating withpeople with aphasia, (iii) cross-linguistic assessment and core outcomes foraphasia research, (iv) predictors of language recovery, and (v) clinicalimplementation of research findings. Within these broad themes, 30 researchobjectives and 91 individual aphasia research components were identified andsequentially ordered. This agenda builds on research priorities identified bypeople with aphasia and their families, and includes priorities of healthcareprofessionals and researchers, and will support the rehabilitation and recoveryof people with aphasia. Our internationally relevant research agenda promotesrigor in methodology, considers international applicability, synergisticactivities, and sharing of resources and expertise.
AB - Coordination ofinternational aphasia research would minimise duplication of effort, supportsynergistic international activities across languages and multidisciplinaryperspectives, and promote high-quality conduct and reporting of aphasiaresearch, thereby increasing the relevance, transparency, and implementation offindings. The Collaboration of Aphasia Trialists (CATs) sought to develop anaphasia research agenda to direct future research activities, based onpriorities shared by people with aphasia, family members, and healthcareprofessionals. Our established international research network spanning 33countries contributed to this activity. Research literature reporting thepriorities of stakeholders was reviewed and synthesized (phase 1).Representatives from Working Groups on Aphasia Assessment & Outcomes,Prognosis & Predictors of Recovery, Effectiveness of Interventions, andSocietal Impact & Reintegration participated in a two-day researchagenda-setting meeting. The CATs expert panel refined research objectives andidentified constituent components of research and methodological developmentsrequired to address these research components. The objectives and researchcomponents were grouped into overarching themes (phase 2). The resultant listwas then circulated to more than 180 CATs members for review, revision, andapproval. Consensus on the final aphasia research agenda and roadmap wasreached by CATs executive committee (phase 3). The expert panel identified fiveoverarching research themes: (i) evidence-based interventions for people withaphasia, (ii) effective interventions to support those communicating withpeople with aphasia, (iii) cross-linguistic assessment and core outcomes foraphasia research, (iv) predictors of language recovery, and (v) clinicalimplementation of research findings. Within these broad themes, 30 researchobjectives and 91 individual aphasia research components were identified andsequentially ordered. This agenda builds on research priorities identified bypeople with aphasia and their families, and includes priorities of healthcareprofessionals and researchers, and will support the rehabilitation and recoveryof people with aphasia. Our internationally relevant research agenda promotesrigor in methodology, considers international applicability, synergisticactivities, and sharing of resources and expertise.
KW - aphasia
KW - research
KW - consensus
KW - priorities
KW - agenda
U2 - 10.1080/02687038.2021.1957081
DO - 10.1080/02687038.2021.1957081
M3 - Article
SN - 0268-7038
VL - 36
SP - 555
EP - 574
JO - Aphasiology
JF - Aphasiology
IS - 4
ER -