Period | 17 Jan 2024 |
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Event title | All Island Paediatric Cardiac Network Conference 2024 : ‘Building a World Class Service’ |
Event type | Conference |
Location | Dundalk, IrelandShow on map |
Degree of Recognition | National |
Keywords
- congenital heart disease
- healthcare policy
- healthcare standards
- advocacy
- healthcare activism
- mental health
- childhood illness
- cardiac surgery
- paediatric cardiology
- paediatric surgery
- chronic illness
- wellbeing
- psychological safety
- lived experience
Related content
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Research Outputs
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Healing Hearts and Minds: A Holistic Approach to Coping Well with Congenital Heart Disease
Research output: Book/Report › Book
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A new measure of feeling safe: developing psychometric properties of the neuroception of psychological safety scale (NPSS)
Research output: Contribution to journal › Article › peer-review
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An exploration of psychological trauma and positive adaptation in adults with congenital heart disease during the COVID-19 pandemic
Research output: Contribution to journal › Article › peer-review
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Healing hearts & minds
Research output: Contribution to conference › Abstract › peer-review
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Born with a heart condition: the clinical implications of Polyvagal theory
Research output: Chapter in Book/Report/Conference proceeding › Chapter
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Liza Morton: Waiting patiently
Research output: Contribution to specialist publication › Article
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The injustice of losing my childhood medical history: personal perspective: "because no one put a sticker on them."
Research output: Non-textual form › Web publication/site
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Baring all: the impact of the hospital gown on patient wellbeing
Research output: Contribution to journal › Article › peer-review
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Every choice has been dictated by my health condition
Research output: Contribution to specialist publication › Article
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Getting it right first time and every time; re-thinking children's rights when they have a clinical procedure
Research output: Contribution to journal › Editorial › peer-review
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Medical trauma: the forgotten adverse childhood experience
Research output: Contribution to specialist publication › Featured article
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Supporting mental health and wellbeing for people with congenital heart disease during the global covid-19 pandemic
Research output: Contribution to conference › Abstract › peer-review
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Health anxiety among adults with congenital heart disease
Research output: Contribution to journal › Review article › peer-review
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Sexual health and well-being in adults with congenital heart disease: a international society of adult congenital heart disease statement
Research output: Contribution to journal › Review article › peer-review
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Using psychologically informed care to improve mental health and wellbeing for people living with a heart condition from birth: a statement paper
Research output: Contribution to journal › Review article › peer-review
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Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus
Research output: Contribution to journal › Article › peer-review
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Psychologically informed medicine: a holistic approach to improve mental health for people living with congenital heart disease
Research output: Contribution to journal › Article › peer-review
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Activities
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Youngest pacemaker baby fights for others like herself - The Times
Activity: Other › Types of Public engagement and outreach - Media article or participation
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Health professionals: Bring more awareness to congenital heart disease - op ed in The Hartford Courant
Activity: Other › Types of Public engagement and outreach - Media article or participation
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Healing Hearts and Minds - The Somerville Heart Foundation, Annual Conference
Activity: Talk or presentation › Invited talk
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Doctors gave me a pacemaker when I was 11 days old - BBC News
Activity: Other › Types of Public engagement and outreach - Media article or participation
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Healing Hearts and Minds: A holistic approach to coping well with congenital heart disease - European Congenital Heart Disease Organisation (ECHDO)
Activity: Talk or presentation › Invited talk
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Congenital heart disease new NHS standards welcomed - The Herald
Activity: Other › Types of Public engagement and outreach - Media article or participation
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World's youngest pacemaker baby now doctor fighting heart defects - STV online
Activity: Other › Types of Public engagement and outreach - Media article or participation
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‘Miracle’ patient to help create new CHD guidelines - Health and Care Scotland
Activity: Other › Types of Public engagement and outreach - Media article or participation
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Impacts
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Congenital heart disease (CHD) standards - published by Healthcare Improvement Scotland (HIS) in December 2023
Impact: Health and well being of people, Clinical practice, Public policy, law and service, Quality of life, Understanding, learning and participation, Education practice, Social welfare