Global ARCH - Global Alliance for Rheumatic and Congenital Heart (External organisation)

Activity: MembershipMembership of council

Description

Member of Global Arch Medical Council, mental health advisory.

Global Arch connect over 110 organizations across 47 countries, including more than 75 patient- and family-led organizations focused on childhood-onset heart disease (COHD). We provide these organizations with the tools, knowledge, and resources they need to empower communities and take action. By fostering collaboration, we facilitate the sharing of best practices and strengthen efforts to address the needs of underserved populations. Our work centers on capacity-building, improving care, and supporting lives impacted by COHD, including rheumatic (RHD) and congenital heart disease (CHD). Our work focuses on 4 key areas, including a global community, capacity building, advocacy, and meaningful inclusion of patients and families.

The Global Alliance for Rheumatic and Congenital Hearts (Global ARCH) began with a visionary group of congenital heart disease and rheumatic heart disease leaders, each directly affected by childhood-onset heart disease. They shared a vision of transforming global congenital heart disease and rheumatic heart disease patient outcomes through empowering patient and family-led organizations.

In the summer of 2017, Global Arch convened the first International Congenital Heart Leadership Summit (ICHLS), which brought together 30 congenital heart disease and rheumatic heart disease leaders representing 21 countries on six continents. In order to create a stronger voice on behalf of congenital heart disease and rheumatic heart disease patients and families, the participants agreed unanimously to form a new, independent non-profit organization called the Global Alliance for Rheumatic and Congenital Hearts (Global ARCH). The collective vision for Global ARCH is to improve and prolong the life of every heart child and adult – no matter where they were born.
Period17 Dec 2024 → …
Held atGlobal ARCH - Global Alliance for Rheumatic and Congenital Heart , United States, Connecticut
Degree of RecognitionInternational